It is a good thing Karly was able to rest today because she has a busy schedule for the next 2 days. Karly will begin in the morning at 9:15. Tomorrow is a day full of blood work, xrays and prep for anesthesia. Friday morning starts at 8:15 and the biopsy is set for 11:00am. She will then have another MRI at 6pm.
I know we are in the right place and they are going to take care of Karly. Today, while doing laundry, I met a lady from Kentucky. Her husband is recovering from a stem cell transplant. They were told at their home hospital that he would never survive the transplant. They were wrong, he will be discharged next week from MDA.
Karly's aunt Terri will be here tonight. Jaquetta had to go home last night, I know we will miss her. Bless her heart I asked her a million questions, since she is a nurse.
Wednesday, April 15, 2009
Tuesday, April 14, 2009
Day 2
Today has been a slow day. Karly had an ultrasound this afternoon and we are still waiting for the biopsy to be scheduled. She is a pediatric patient and sadly there are ALOT of pediatric patients here. They are trying very hard to coordinate the biopsy, blood work, x-rays and another MRI for the next day or two. We will know in the morning when the biopsy will be. I know it will not be tomorrow because she has to meet with anesthesia the day before her biopsy.
Thank you for all your thoughts and prayers. Please keep Mom in your prayers too as she will have an angiogram on Thursday.
Thank you for all your thoughts and prayers. Please keep Mom in your prayers too as she will have an angiogram on Thursday.
Monday, April 13, 2009
Day 1 @ MDA
We made it to Houston yesterday evening & Karly's 1st appointment was this morning at 7am. The shuttle from the hotel leaves at 6am, so we had a very early start.
Karly's 1st appointment was with Mom's doctor, Dr. Thomas Burke. He is as nice, if not nicer than Mom had said. His wife is his PA and she was wonderful with Karly. Dr. Burke told us that after looking at her MRI that the mass was NOT in her uterus or ovaries. The mass is behind some blood vessels at the back of her pelvis. Dr. Burke did order an ultrasound just to take an extra look at her ovaries. After seeing Dr. Burke we headed over to the Children's & Juvenile Clinic.
Dr. Herzog at the Children's clinic wants a biopsy to be done so that we know what we are dealing with. We won't know when that will be performed until this afternoon. The MRI we brought from Odessa has to be uploaded into the system before a procedure can be scheduled.
When we left the hospital, Karly said, "I want to eat, sleep, go to the mall, eat and sleep again. In that order." She is on her 1st round of sleeping. I am headed that way also.
Karly's 1st appointment was with Mom's doctor, Dr. Thomas Burke. He is as nice, if not nicer than Mom had said. His wife is his PA and she was wonderful with Karly. Dr. Burke told us that after looking at her MRI that the mass was NOT in her uterus or ovaries. The mass is behind some blood vessels at the back of her pelvis. Dr. Burke did order an ultrasound just to take an extra look at her ovaries. After seeing Dr. Burke we headed over to the Children's & Juvenile Clinic.
Dr. Herzog at the Children's clinic wants a biopsy to be done so that we know what we are dealing with. We won't know when that will be performed until this afternoon. The MRI we brought from Odessa has to be uploaded into the system before a procedure can be scheduled.
When we left the hospital, Karly said, "I want to eat, sleep, go to the mall, eat and sleep again. In that order." She is on her 1st round of sleeping. I am headed that way also.
Thursday, April 9, 2009
Updated Info
We will be flying from Midland to Houston Sunday evening at 6pm. Karly's first appointment is at 7 Monday morning. Me, my sis Claudia, Karly's dad Kenneth and stepmom Jaquetta will all be flying with Karly to Houston. Mom is staying here and keeping Lexie for several reasons.
1) Lexie won't stay with very many people 2) Mom has an angiogram scheduled for Thursday
I know we are going to the right place, MD Anderson is the best and they have taken care of my mom and many others we know. I can't begin to express the thanks I want to for all the calls, emails, text messages, flowers, cards, food and most of all the PRAYERS. We are so blessed to such wonderful friends and family.
1) Lexie won't stay with very many people 2) Mom has an angiogram scheduled for Thursday
I know we are going to the right place, MD Anderson is the best and they have taken care of my mom and many others we know. I can't begin to express the thanks I want to for all the calls, emails, text messages, flowers, cards, food and most of all the PRAYERS. We are so blessed to such wonderful friends and family.
Wednesday, April 8, 2009
Today's News
I think I am still in shock.
I decided to create a blog so I would have to repeat the news over and over.
Some of you know that Karly has had back pain on and off since June. We saw the pediatrician and she sent us to an orthopedic doctor. That doctor could not give us an answer for her pain, but at that time she was not hurting. After a BAD spell last week and at the advice of a local doctor we made an appointment with a neurologist.
We saw that doctor on Friday and he ordered an MRI. The MRI was performed yesterday. When we saw the doctor for the results to day, he told us that Karly has a large mass in her abdomen and sent us straight to the oncologist.
The oncologist wanted us to go to Dallas but I told him we would go to Houston, MD Anderson only. Mom called her doctor at MD Anderson and he will see Karly Monday morning. That was an answered prayer!
The oncologist we saw today did give us some of the good points, she is not sick (meaning losing weight or not eating) and she is not in constant pain.
I will finish up with all the arrangements for the trip to Houston in the morning.
I decided to create a blog so I would have to repeat the news over and over.
Some of you know that Karly has had back pain on and off since June. We saw the pediatrician and she sent us to an orthopedic doctor. That doctor could not give us an answer for her pain, but at that time she was not hurting. After a BAD spell last week and at the advice of a local doctor we made an appointment with a neurologist.
We saw that doctor on Friday and he ordered an MRI. The MRI was performed yesterday. When we saw the doctor for the results to day, he told us that Karly has a large mass in her abdomen and sent us straight to the oncologist.
The oncologist wanted us to go to Dallas but I told him we would go to Houston, MD Anderson only. Mom called her doctor at MD Anderson and he will see Karly Monday morning. That was an answered prayer!
The oncologist we saw today did give us some of the good points, she is not sick (meaning losing weight or not eating) and she is not in constant pain.
I will finish up with all the arrangements for the trip to Houston in the morning.
Subscribe to:
Posts (Atom)