Friday, July 31, 2009

We began the day yesterday bright and early, Karly had to be in clinic at 7am for lab work. We saw the doctor by 8am, and she said the plan is to do 3 more cycles of chemo, now just 2, and then begin radiation. Karly will continue on with chemo while she goes through radiation. Another PET scan will be done before we begin radiation to compare with the one she had last week. That was the 1st PET scan she had so it will serve as a baseline. We were all very happy that some "funny" spots that had showed up in her lungs on the most recent lung CT did not show up on the PET scan. GREAT NEWS!

We spent the day waiting for a room and around 5:00 we made it in a room.

About 8:45pm, Lexie tumbled off the hospital bed. Lexie usually is quite dramatic when she gets a booboo, but last night she was not being her usual dramatic self and that worried me. :) Her left arm was really hurting her and the charge nurse suggested I take her to the ER. They were nice enough to let me take her to the ER her at MDA. Well I say nice, we spent almost 4 hours in the ER. But after seeing the doctor and having 6 xrays, I was so thankful that Lexie had not broken her arm. I would call the nurses station and check on Karly during the 4 hours we were in the ER and she stayed asleep the whole time. :) She missed all the action.

Lexie's arm is still very sore today and has slowed her down a bit. She is not crazy about all the attention it caused. I was talked to the school teacher about what happened earlier and Lexie said, "come on its over, that's enough."

Karly is done with one more round of chemo. Her hemoglobin levels were low yesterday and chemo didn't do them any favors. She is receiving a blood transfusion right now. Once she is finished receiving blood we will get to leave. Her sweet nurse today was from Midland. Small world!

These people here have there work cut out for them in the next few hours. Half of the pedi floor(9th) is moving up to the 12th floor so a new call light system can be installed. That means ALL the patients and all there stuff has to be moved within the next few hours. We are so glad we are leaving. I am sure the nurses are glad too, that makes one less patient to worry about. After, they finish this half they will do the same thing to the other side of the floor. yuck!

Monday, July 27, 2009

I apologize for the delay in posting but there hasn't been much to post. We had a nice, restful weekend. Friday night, we had a girls' night out. We went and saw G-Force. It was a super cute movie. We then had dinner at Red Robin, which was a first for all 3 for us. We spent the rest of the weekend relaxing.

This morning, Karly went in for routine blood work. Her counts were not great but they weren't bad either. I gave her the last injection she will receive before Thursday. Say a prayer that her counts will be right where they need to be so she can get one more round of chemo behind her on Thursday. We are scheduled to be at the clinic at 7am Thursday morning for labs and the cycle 7, this will just be a 1 day cycle.

Thank you all for the continued prayers. Your love and support helps us get through each day.

Wednesday, July 22, 2009

Karly was able to take her last 2 doses of Mesna by mouth yesterday so we got out of the hospital around 4pm. The Mesna is given at 1, 3, 5, 8 and 11 hrs following chemo to protect the bladder. Karly did not experience any vomiting yesterday and besides being tired she felt pretty good. She had to follow a specific diet last night and this morning to prepare for the PET scan. Last night for a snack she could have cheese and salami slices. HAHA If any of you have ever been around Karly when she eats, you can only imagine the look I got when I said salami.

Karly had her PET scan today and she slept right through it. We got to visit with Daniel and his mom, Laura today at the hospital. They will be heading home(Sudan) Friday or Saturday and will be back here in September. We are so glad they are getting to go home but we will miss our West Texas buddies! :)

We are finished at the hospital for the week.

Monday, July 20, 2009

Day 4 of Cycle 6

Today was day 4 of 5 days of chemo. The first 3 days of chemo were nice and smooth. Today got off to a good start. Karly got up had breakfast, a shower and a nice visit from Victoria and her dad, John. Chemo started around 10am and was done about 2 hours later. Karly has been having body aches and today they have been really bad. They gave her pain meds a couple times and then the vomiting kicked in. But, they don't let her vomit or even feel nauseous with out trying to find a way to fix it. Right now she is up and eating chicken strips from Sonic.

We hope to be out of here tomorrow around 5pm. Karly will have a PET scan on Wednesday.

I want to Thank everyone for Lexie's birthday cards and gifts. She had a great birthday last week!

Saturday, July 18, 2009

Karly finally got in a room at about 7:30 last night. She started chemo at 10:30pm and is doing well. She sleeps most of the time due to the anti-nausea meds and one of the chemo drugs. We will be here through Tuesday evening.

Before coming to the hospital last night, we got to spend some time with Donny and Shaunie. Karly and Donny compared stories and battle wounds. Donny is doing great and looks wonderful!

Mom and Dad have been here since Tuesday and been helping entertain Lexie. Dad is heading home this evening, but Mom is staying until Wednesday or Thursday.