Sunday, May 31, 2009

We had a great weekend. Saturday, Karly and I drove to Canyon Lake to the Songer family reunion. It was only about a 3 hours drive from Houston. We had a wonderful time getting to visit with family and of course finally getting to see Lexie! Lexie came back to Houston with us and will stay as long as possible.

Bub and Nona had several bags of stuff for us, but one of the prized goodies was a cap from the Seminole Fire Department! haha You guys are great and she thinks ALOT of all of you. Thanks for everything and she can't wait for her brisket! :)

Today, we went and watched "Up". It was very cute! After the movie Lexie got to swim for a while, not long enough according to her. Then we headed to Razzoo's because Karly wanted fried pickles! :)

We go back in at 10 in the morning to have blood drawn and if her levels are good she will have chemo tomorrow. Lexie will be with us, so we may need an extra prayer or two! ;)

Thursday, May 28, 2009

not today...

Karly's blood counts were too low for chemo today. We will go back on Monday and try again. There were no beds open today anyhow so I guess today was not the right day for chemo.

Tuesday, May 26, 2009

Happy Birthday Pa Dagley!

Karly says, "Happy Birthday Pa!" Today is Dad's birthday :)

I hope everyone had a wonderful Memorial Day weekend! We have already been to the hospital this morning and are back at the apartment; Karly had to have blood work this morning. She is getting ready for her next round of chemo on Thursday.

She has been feeling great and is wearing her xBox out! :) Lexie will be here on Sunday and we are both very excited about that. She will be staying at least 10 days, possibly longer.

Friday, May 22, 2009

a day @ the beach

Karly felt like taking a small day trip today. So, before Nona left we headed to Galveston for the day. Today was a perfect day, not too hot. Galveston is still recovering from the hurricane last year but it was beautiful. We enjoyed a great lunch and relaxed on the beach. What a wonderful break from all the medical stuff.

We hope you all have a wonderful Memorial Day weekend!

Thursday, May 21, 2009

Karly went in today for blood work and her counts are up so no more injections. She only had to have 2 this time after chemo. Woo-Hoo!!

Nona has been cooking away and filling the freezer with yummy food. It has been wonderful having her here. She will be going home tomorrow. She will go from taking care of me and Karly to taking care of Lexie. However, Bub and Brian have been doing a great job of that while Nona has been here. Lexie will be going with Bub, Nona and the boys to the Songer family reunion at Canyon Lake next weekend and I am going to go get her from them on Sunday. Karly and I can't wait to see her. She will be here for a little over a week.

Tuesday, May 19, 2009

out of the hospital

We finally made it out of the hospital last night. Karly was so glad to be out and back in her bed at the apartment. She is slowly working on getting her appetite back. She has spent all day today in bed resting and trying to regain some strength. This round of chemo was difficult but we learned some things and will be prepared for it the next time she has the 5 days of chemo.

I actually got a "Bravo" from her today when I gave her the injection. So, I guess I am improving. That is definitely a good thing! She will go in on Thursday for blood work to check her levels.

Thank you for continuing to pray for us. We know our strength comes from all the prayers being said for us.

Monday, May 18, 2009

waiting to be discharged

Karly is finished with this round of chemo and we are just waiting to get out of the hospital. We all know how that goes, wait, wait, wait.

Nona made it here on Friday and it has been great having her here.

I will let everyone know when we make it back to the apartment!

Saturday, May 16, 2009

a long day

Today has been a long day for Karly. She started the 3rd day of the 5 day chemo today. She has felt pretty bad all day. She hasn't been able to get comfortable and rest and she hasn't been able to eat. They just gave her some more medicine so hopefully she will start feeling a little better soon.

Friday, May 15, 2009

Celebrate. Remember. Fight Back.

Friday, May, 15, 2009 9:45pm

I hope hope the sky in Seminole is clear and everyone is preparing to hear Dana speak at the Gaines County Relay for Life. What an amazing woman she is! She is such an inspiration to me. Not only did she take care of her son with great strength and courage but she also battled her own fight with cancer and won! She is a survivor and one of the many reasons to CELEBRATE on this night. Karly and I will be there next year, but since we couldn't make it this year we were supplied with tons of goodies from the Relay for Life. We will proudly wear our Gaines County Relay for Life shirts.

Have a great night!

Thursday, May 14, 2009

Round 2

We are back at the hospital, actually back in the same room we were in the last time. Karly already said that this time will be much better than the last. During the first round of chemo she was so sore from having the port placed it was difficult for her to move around.

Tomorrow is a big party day here on the Children's floor, so she will get to have a little fun tomorrow. We met another young man today, Josh, who had his last treatment for Ewing's December 22. He was here today for his 3 month check up. Karly and Josh got to visit and compare stories, and I enjoyed visiting with his mom.

My mom is doing well after her surgery. Lexie has been staying with Bub and Nona. Karly and I got to see/talk to Lexie, Nona, Shannon, Bubba and the dogs :) last night with the help of our webcams! It was great!

Tuesday, May 12, 2009

crocheting again

Well school was not as great as we had hoped but it is out here May 22, so not much longer.

Grandma Dagley taught me how to crochet many years ago, I think I was 9 or so. I decided while I was doing all this sitting and waiting I might as well start crocheting again. So, I went to Hobby Lobby and bought the basics.

Karly goes back in the hospital Thursday for the next round of chemo. This is actually the second half of the first cycle. She has 3 drugs for 1 day, has a 2 week break, then has 2 drugs for 5 days, off 2 weeks and so on. She will have 6 cycles before surgery and each cycle takes about 5 weeks.

Mom is going in the hospital at midnight tonight to have her gallbladder removed, please keep her in your prayers.

Sunday, May 10, 2009

Happy Mother's Day

Happy Mother's Day to all the moms out there. I am spending today here in Houston with Karly while Mom spends today with Lexie in Seminole.

Karly's blood counts were up, way up, on Friday so we were able to stop the injections. I was giving her Neupogen injections. Neuogen increases the white blood cells and as we all remember from science class :) white blood cells help the body fight off infections. She will not go back to the doctor until Thursday. She will be admitted that day and she will receive chemo for 5 days.

As I said before, she starts school in the morning, I was so worried about her going. I asked her, "Karly, will you be ok without me?" She just gave me a look and said, "Mom, I'll be at the hospital, where better could I be?" I couldn't argue with that.

I can never say THANK YOU enough for all the kind things people continue to do for us, not just me and Karly but the rest of my family & Kenneth's family.

Wednesday, May 6, 2009

week 4

Karly's white blood count is still low so we will continue the shots until her levels are where they need to be. She will have her levels checked again on Friday.

We met with the sarcoma surgeon today, we didn't know we were going to until we got there this morning. She was great, LOVED HER!!! She even told Karly to call her with any questions. She said, "it doesn't have to be mom that calls, you can call me anytime."

Karly will start school on Monday. She is really excited about meeting some new people. Kris, the education coordinator, said there are actually alot of kids in the high school class. We met one today, Keaton who is 15 and has Osteosarcoma which is in the same family as Ewings.

Tuesday, May 5, 2009

a quick udate

Not much has been going on the past few days. Karly is getting bored and homesick.

Tomorrow she will have blood work done to check her levels. Hopefully, her white blood cells will be where they need to be and I will not have to give her anymore shots. But, if I have to I am getting pretty good at it. :) On Friday, we have an appointment with the spine specialist just for a consultation and then more blood work.

Thank you for all the prayers and support.

Sunday, May 3, 2009

this weekend

It is Sunday, I only know that because other people have told me that. haha We have a schedule but it is set to hours not days so I have lost track of days. :)

We enjoyed Bub and Nona being here. Karly felt up to going out to eat, she wanted fried pickles! Who would have thought, fried pickles?? Then we headed for some ice cream.

Karly got all kinds of goodies and cards in the mail yesterday. She loved opening every card and package. Thanks!

Friday, May 1, 2009

sweet notes from home

Today Karly received several cards in the mail. She also received 2 banners that Mrs. Hicks had the kids at school sign. These banners are fabulous and we have them hanging in our bedroom.

Karly felt good today. She was not as tired today as she has been the past few days. She ate really well today and we even went out for ice cream. I am normally a bit paranoid about germs and this swine flu has me even more germ crazy, so we have been staying away from crowds and I am cleaning everything all the time. I asked Karly if she thought it would be too much for me to put hand sanitizer outside the apartment door. ;)

Bub and Nona made the long drive down here to bring me my car. It was so good to see family!